Jesy Nelson Shares Milestone Moment with Twin Daughters Battling SMA Jesy Nelson, the 34-year-old singer, shared a heartwarming video of her 11-month-old twin daughters, Ocean and Story, trying food for the first time in their specialised feeding chairs. The twins, who have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, are at the center of Jesy's advocacy for newborn testing for the condition. Despite progress, Jesy highlights the ongoing challenges and her commitment to ensuring all babies are screened for SMA. Jesy Nelson, the 34-year-old singer, recently shared a heartwarming milestone with her 11-month-old twin daughters, Ocean and Story, on Instagram. The video captured the first time the twins tried eating in their specialised feeding chairs, a significant moment in their journey with Spinal Muscular Atrophy (SMA) Type 1, a rare muscle-wasting condition. Jesy, who revealed the diagnosis in January, praised her daughters as they attempted to eat fruit purée, with Ocean playfully spitting it out. Jesy humorously told Ocean, 'Excuse me, you're supposed to eat it, not spit it out,' before turning her attention to Story, who seemed to enjoy the sweet treat.This moment was particularly poignant for Jesy, who had previously expressed her sadness when the specialised chairs arrived in February, saying, 'It just made me feel so sad as it’s just another reminder of another obstacle we have to tackle.' Since her twins were diagnosed, Jesy has been a vocal advocate for newborn testing for SMA1 in the NHS. A late diagnosis means her twins will be unable to walk, and Jesy has been campaigning tirelessly to ensure other families do not face the same challenges. Her efforts have gained traction, with Health Secretary Wes Streeting announcing plans to screen over 400,000 babies for the condition from October 2026.However, Jesy has highlighted that the screening will only be available in certain areas of England, creating a 'postcode lottery' for families. She has vowed to continue her fight to ensure all babies are tested, regardless of their location. Jesy's advocacy has also led to a parliamentary debate on the issue, thanks to a petition that garnered 100,000 signatures.She expressed her gratitude to her supporters, saying, 'That is all down to you guys so thank you so so much, you're incredible and I am so appreciative of all the support and love, thank you so much.' Spinal Muscular Atrophy (SMA) is a disease that weakens a patient's strength by affecting the motor neuron cells in the spinal cord. It results in gradual muscle wasting, and the severity of symptoms varies by type. Type 1 SMA is the most severe and is evident at birth, often leading to death by the age of five.Type 2 is intermediate, with sufferers unable to stand, while Type 3 is mild, making it difficult to get up from a sitting position. Type 4 sufferers do not experience symptoms until their 20s or 30s